-
Cardiovascular System
-
(including Heart and Circulation)
Anticoagulation
Europe
AntiCoagulation Europe (ACE) is a registered
charity committed to the prevention of
thrombosis and the provision of information
and support for people already receiving
anticoagulant and anti-platelet therapy. As
well as a comprehensive web site, a
quarterly magazine, leaflets and fact sheets
are available.
They
aim to give support to all patients, their
families and carers on all aspects of
anticoagulation therapy, as well as
fostering and encouraging communication and
education on anticoagulation therapy.
AntiCoagulation Europe (ACE) campaigns for
excellence and equity of provision of
healthcare and, with its advisory panel of
leading experts, is actively involved in the
development and implementation of Government
policies and initiatives to encourage people
to take an active role in their own health
care.
Who
for: Anyone who uses warfarin, other
anticoagulants or antiplatelet therapy
Referral: Self
Cost: £8-00
Contacts
Website:
http://www.anticoagulationeurope.org
Telephone: 020 8289 6875
Fax: 020 8464 2417
Blood Pressure
Association
The Blood Pressure
Association is a UK registered charity, that
provides
information
and support to people with high blood
pressure. A fundamental part of their work
is to draw attention to the need to improve
detection, management and treatment - and
through their ongoing
"Know Your Numbers!"
campaign they are determined that everyone
in the UK will realise the importance of
knowing their blood pressure levels.
Who
for: Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.bpassoc.org.uk
Telephone: 020 8772 4994
Membership Line: 020 8772 4983
Fax: 020 8772 4999
Brain & Spine Foundation
The Brain
and Spine Foundation was set up in 1992 to
develop
research,
education and
information programmes
aimed at improving the prevention, treatment and
care of people affected by disorders of the
brain and spine and to stimulate the greater
allocation of resources across all neurological
disorders.
Thirteen
years on, it continues to provide a wide range
of information and services for patients, carers
and health professionals. During this time, they
have produced 31 Booklets on a variety of
neurological conditions, work books for schools
and colleges, and educational videos for GPs and
other health professionals.
The Brain and Spine Helpline, run by
neuroscience healthcare professionals, has
responded to over 20,000 calls since its launch
in 1998.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.brainandspine.org.uk
Telephone: 020 7793 5900
Helpline: 0808 808 100
Fax: 020 7793 5939
The British Cardiac Patients
Association
BCPA are
here to listen to any medical and non-medical
cardiac problems, which may arise before, during
and after discharge from hospital.
They are
ex-patients of many years standing, having gone
through some of the experiences and situations
that you may come across, wishing to give some
caring advice to help with rehabilitation.
They cover
all aspects of coronary heart disease, from
tests and diagnosis to procedures and
treatments. They are here to offer support when
it’s needed most. They can offer to help others
try and deal with the psychological effects of
this life long condition, so as to help give a
better quality of life.
They have
many area groups, throughout the British Isles
who meet socially each month. So why not go
along to one of their meetings.
Who for:
Cardiac patients and their families
Referral: Self
Cost: £10-00 pa
Contacts
Website:
http://www.bcpa.co.uk
Telephone: 01954 202 022
Helpline: 01223 84684
British Heart Foundation
As the
nation's heart charity, the British Heart
Foundation focuses on three vital things:
Investing in pioneering research
Funding around 1,200 research projects
investigating every aspect of heart disease -
from causes and safer drugs to improving
surgical techniques.
Supporting and caring for heart patients
Funding BHF Nurses who visit heart patients with
all types of heart conditions in their homes.
They provide defibrillators and echocardiograph
machines for hospitals, emergency services and
first-aiders.
Providing vital information to help people
reduce their own risk of dying prematurely from
a heart or circulatory related illness
They produce publications, videos and other
materials for health professionals and the
public including children. They inform people
about how to improve the health of their heart
through public information campaigns,
advertising and the media.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.bhf.org.uk
Telephone: 020 7935 0185
Heart Information Line: 08450 70 80 70 (Mon,
Tues, Fri 9am-5pm & Wed, Thurs 8am-6pm)
Publications Order Line: 0870 600 656
Children’s Heart Federation
The
Children's Heart Federation is dedicated to
helping children with congenital or acquired
heart disease and their families in the UK and
Ireland. They are a parent-led charity
consisting of 22 organisations, all of which are
registered charities whose main aim is the
support of families of children with heart
conditions.
They aim
to improve the quality of life of children and
young people living with congenital and acquired
heart disease by providing information and
working to gain recognition of their needs and
ensure adequate resources are available to meet
them by:
-
providing information and support
-
promoting effective services for their care
and treatment
-
campaigning to improve the clinical and
social care of those affected by congenital
and acquired heart disease
-
raising awareness -of the needs of children
with heart conditions and their families.
Their
vision is of a society in which all children
with congenital heart disease have both their
medical and social needs met so that they can
live life to the full.
Who for:
Children with congenital or acquired heart
disease and their families
Referral: Self
Cost: No charge
Contacts
Website:
http://www.childrens-heart-fed.org.uk
Telephone: 020 7422 0630
(9am-5pm Mon to Fri)
Helpline:
0808 808 5000 (9.30am - 4.30pm Mon to Fri)
Fax: 020 7247 2087
H.E.A.R.T. UK
The
national charity for patients and their families
which combines the rich skills of research
scientists and the caring and knowledgeable
attention of doctors, nurses and dietitians, in
order to support all those at risk of inherited
high cholesterol and cardiovascular disease.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://heartuk.org.uk
Telephone: 01628 777046
Helpline:
0845 450 5988
Fax: 01628 628698
The Haemophilia Society
The
Society was established in 1950 and is the
national charity in the UK of and for people
with haemophilia, von Willebrand's and related
bleeding disorders. They have over 4000 members
and supporter as well as a network of 16 local
groups throughout the UK. They provide
information, advice and support services and
they advocate and campaign to secure the best
possible care and treatment.
They also provide services for people with
haemophilia affected by HIV and hepatitis C.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://haemophilia.org.uk
Telephone: 020 7831 1020
Freephone Helpline: 0800 018 6068 (Mon-Fri
10am-4pm)
Fax: 020 7405 4824
Hearts for Life
The
Hearts for Life website is designed to help you
make the right choices to keep your heart
healthy. If you are already suffering from heart
disease, it will help you to understand what
treatments are planned for you, what they will
mean to your everyday lives, and what you can do
to prevent further disease.
Hearts
for Life is not a commercial website. All
material on the website has been prepared by the
Hearts for Life website steering committee by an
independent medical writer, based largely on the
National Service Framework for Coronary Heart
Disease, the ten-year programme for improving
cardiac services in England, published by the
Department of Health in March 2000.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.heartsforlife.co.uk
Inate – Investigators
Against Thromboembolism
INvestigators Against ThromboEmbolism (INATE) is
an educational website that aims to improve the
worldwide management of patients with venous
thromboembolism (VTE). Begun in 2001 by a Core
Group of 12 investigators representing a wide
range of countries and disciplines, the website
has continued to grow as an important resource
for physicians and patients.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.inate.org
National Institute of
Neurological Disorders
The
National Institute of Neurological Disorders and
Stroke (NINDS) conducts and supports research on
brain and nervous system disorders. Created by
the U.S. Congress in 1950, NINDS is one of the
more than two dozen research institutes and
centers that comprise the National Institutes of
Health (NIH). The NIH, located in Bethesda,
Maryland, is an agency of the Public Health
Service within the U.S. Department of Health and
Human Services. NINDS has occupied a central
position in the world of neuroscience for 50
years.
The
mission of the NINDS is to reduce the burden of
neurological disease—a burden borne by every age
group, every segment of society, and people all
over the world. To accomplish this goal the
NINDS supports and conducts research, both basic
and clinical, on the normal and diseased nervous
system, fosters the training of investigators in
the basic and clinical neurosciences, and seeks
better understanding, diagnosis, treatment, and
prevention of neurological disorders.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.ninds.nih.gov
Sickle Cell Society
The
Sickle Cell
Society was first set up as a
registered charity in 1979. It was formed by a
group of patients, parents and health
professionals who were all concerned about the
lack of understanding and the inadequacy of
treatment for sufferers of sickle cell
disorders.
The
Society is managed by a committee of 12
volunteers elected at the Annual General
Meeting, and they meet each month. The
Management Committee is accountable to the
membership and works with a small core of paid
staff to further the Society's aims by providing
special services and welfare schemes for sickle
cell sufferers.
The
Society provides a wide range of services from
information, advice and counselling, to
financial help, holidays, briefings, seminars
and training. The Society is committed to
ensuring that sufferers benefit directly from
voluntary donations that make up the welfare
fund.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.sicklecellsociety.org
Telephone: 020 8961 7795
Fax: 020 8961 834
The Stroke Association
The Stroke
Association is the only UK wide charity solely
concerned with combating stroke in people of all
ages. It funds research into prevention,
treatment and better methods of rehabilitation,
and helps stroke patients and their families
directly through its Rehabilitation and Support
Services. These include Communication Support,
Family and Carer Support, information services
and welfare grants. We also campaign, educate
and inform to increase knowledge of stroke at
all levels of society, and we act as a voice for
everyone affected by stroke.
The Stroke Association produces a number of
publications including patient leaflets, Stroke
News (a quarterly magazine) and information for
health professionals.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.stroke.org.uk
Telephone: 020 7566 0300
Fax: 020 7490 2686
Textphone: 020 7251 9096
Helpline:
0845 3033 100
(calls charged at local rate) open Monday to
Friday, 9am to 5pm.
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