-
Continence
-
(including Kidneys)
B.K.P.A.
The
British Kidney Patient Association was
founded in 1975 by Elizabeth Ward OBE after
her son Timbo was diagnosed with kidney
failure at the age of 13 years. At that time
there was no national association concerned
with the plight of Britain's kidney
patients, many of whom were struggling to
survive bitter blows to their health, pride
and finances by the need for thrice weekly
dialysis. Kidney patients young and old now
know they can turn to the BKPA for support,
advice and perhaps more importantly,
financial help and a much needed break with
their families. Sadly, Timbo died following
his third transplant but the work of the
BKPA continues and relies upon the caring
and generosity of the many members of the
public anxious and willing to give their
practical support.
Who
for: Kidney patients and their families
Referral: Self
Cost: Membership
Contacts
Website:
http://www.britishkidney-pa.co.uk
Telephone: 01420 472021/2
Fax: 01420 47583
Continence Foundation
Leakage from the bladder is all too common,
especially if you laugh, sneeze or exercise
("stress incontinence"). Less common is leakage
from the bowel. But other problems are:
-
needing often to hurry to
the toilet to empty your bladder
-
needing to empty your
bladder very many times a day
-
having to get up several
times a night to go
-
wetting the bed in your
sleep - can happen to people of all ages,
not only children
-
your bladder does not
empty completely
-
you need adaptations to
your home or your clothes to make going to
the toilet easier
-
you have a learning
difficulty or memory problems that affect
your ability to use the toilet
The
most important thing is that treatments are
available for all of these problems. Some people
can be completely cured, others will feel a
whole lot better.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.continence-foundation.org.uk
Telephone: 020 7404 6875
Fax: 020 7404 6876
Helpline: 0845 345 0165 Monday to Friday,
9:30am to 1:00 pm
ERIC Online
Education and Resources for Improving Childhood
Continence [ERIC] is a national registered
charity [1002424] which provides advice and
information to younger children, teenagers,
parents and professionals on the common and
stressful condition of nocturnal enuresis or
bedwetting. ERIC also offers advice on childhood
day-time wetting and soiling. Established in
1988, it is the only organisation of its kind in
the UK - and the first in the world.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.eric.org.uk
Helpline: 0845 370 8008 between 10:00 am -
4:00 pm, Monday – Friday
Fax: 0117 960 0401
Incontact
Incontact is a leading national organisation
that provides information and support to people
with bladder and bowel problems, their carers
and health professionals that look after them.
We represent the interests of people with
continence problems and try to ensure you have
access to the latest information and services
available that will make a difference to your
quality of life.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.incontact.org
Telephone: 0870 770 3246
Fax: 0870 770 3249
Kidney Research UK
Founded
in 1961, Kidney Research UK is the leading UK
charity funding research that focuses on the
prevention, treatment and management of kidney
disease. Kidney Research UK also dedicates its
work to improving patient care and raising
awareness of kidney disease.
Who for:
Kidney patients, their families and friends
Referral: Self
Cost: No charge
Contacts
Website:
http://www.kidneyresearchuk.org
Telephone: 0845 070 7601
Kidney Health Information: 0845 300 1499
National Kidney
Federation
The National Kidney
Federation is unique because, although there are
a large number of kidney charities, the NKF is
the only national kidney charity actually run by
Kidney Patients for Kidney Patients.
Most Renal units have a
Kidney Patient Association (KPA)
specifically attached to that unit, however, 27
years ago (1978) these independent charities
realised that they needed a national
organisation to fight their cause as renal
provision was in dire difficulties,
overstretched, and under resourced. If ever
there was a case of post code provision, renal
disease was it! Currently there are 69 KPAs and
they come together as the controlling Council of
the National Kidney Federation, the KPAs are
both the ears and the eyes of the NKF and its
controlling force. Patients are the Officers of
the NKF, the Executive Committee of the NKF and
the workforce of the NKF. Apart from six members
of staff, all other personnel are either Kidney
patients or carers of Kidney patients.
Unlike other kidney
charities, the NKF has only two roles
campaigning for improvements to renal provision
and treatment, and national patient support
services.
Who for:
Kidney patients, their families and friends
Referral: Self
Cost: No charge
Contacts
Website:
http://www.kidney.org.uk
Telephone: 01909 487795
Fax:
01909 481723
Helpline: 0845 601 02 09
<<
Previous
|
Next >>
|
