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Digestive and Bowel Disorders
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(including Liver)
British Liver Trust
The
Trust is based in Ringwood, Hampshire and
has a small but dedicated team tackling a
serious and growing public health problem
affecting around two million people in the
UK.
They
have dedicated resources for people with
liver disease like their website, helpline
and publications. Their aim is to reach out
to as many people as possible by providing
information and support, and lobbying for
the services people with liver disease need.
They have strong contacts with professionals
in the field of hepatology that enable them
to provide the most up to date information.
Who
for: Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.britishlivertrust.org.uk
Telephone: 01425 481320
Free Helpline: 0800
652 7330
Fax: 01425 481335
Children’s Liver
Disease Foundation
The
mission of Children's Liver Disease
Foundation is to fight childhood liver
disease through funding pioneering medical
research, providing effective education and
giving professional and caring support to
families and young people with liver
disease. Continuing its leading role in the
field of caring for children with liver
disease, the Foundation aims to develop its
programme of activities to provide an
authoritive and effective voice in support,
in every respect, of young people, families
and medical professionals.
Who
for: Young people with liver disease, their
families, friends and carers
Referral: Self
Cost: No charge
Contacts
Website:
http://www.britishlivertrust.org.uk
Telephone: 0121 212 3839
Fax: 0121 212 4300
Coeliac UK
Coeliac
UK is the leading charity working for people
with coeliac disease and dermatitis
herpetiformis (DH). Their mission is to improve
the lives of people living with the condition
through support, campaigning and research. Their
vision is that the needs of people with coeliac
disease and DH are universally recognised and
met.
They
work to achieve this vision by:
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providing expert and independent information
to help people manage their health and diet
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campaigning on their behalf to improve
access to fast diagnosis, good subsequent
healthcare and safe foods - in the home and
out
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researching new treatments and the
possibilities of a cure.
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Who for:
People
with coeliac disease, their
families, friends and carers
Referral: Self
Cost: No charge
Contacts
Website:
http://www.coeliac.co.uk
Telephone: 01494 437 278
Fax: 01494 474 349
Helpline:
0870 444 8804
Colostomy Association
The
Colostomy Association was set up in November
2005 to provide support, reassurance and
practical information to anyone who may be about
to have, or already has a colostomy. Appropriate
support and advice is also provided to families
and carers both before and after surgery.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.colostomyassociation.org.uk
Telephone: 0118 939 1537
Fax: 0118 956 9095
Helpline:
0800 587 6744 or 0800 328 4257
CORE – Digestive
Disorders Foundation
CORE
aims to...
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Fund research in order to prevent, cure or
treat digestive disorders
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Provide information for sufferers, their
families and friends
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Increase the knowledge of the symptoms of
digestive disorders and urge those
experiencing those symptoms to seek a swift
diagnosis.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.digestivedisorders.org.uk
Telephone: 020 7486 0341
(please note this is not a helpline)
Fax: 020 7224 2012
Gastroclub
This
website is designed to help you understand your
acid related disorder and how it affects your
digestive system.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.gastroclub.co.uk
The GUT Trust
The
website of the IBS network
Who for:
Anyone suffering from irritable bowel syndrome
Referral: Self
Cost: £24-00 per annum
Contacts
Website:
http://www.theguttrust.org
Telephone: 0114 272 32 53
Fax: 0114 201 11 12
Helpline: 0114 272 32 53
Hepatitis B Foundation UK
What
does the Hepatitis B Foundation UK do?
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Raises awareness about the prevention of
hepatitis B virus (HBV) infection, including
the key role of immunisation.
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Raises awareness about the treatment and
management of chronic hepatitis B.
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Offers advice and information to individuals
with HBV infection or to their families and
friends, providing a 'bespoke' service by
phone/email/post.
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Facilitates networking between patients
and/or families affected by HBV infection,
putting people in touch with others for
support and sharing of experiences.
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Campaigns to secure the best possible
services in the UK for the prevention of HBV
infection, including universal immunisation.
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Campaigns to secure the best possible
services in the UK for the management of
hepatitis B virus-related liver diseases,
including liver cancer.
Who for:
Anyone with hepatitis B virus infection, their
families and friends
Referral: Self
Cost: No charge
Contacts
Website:
http://www.hepb.org.uk
Telephone: 01227 738279
(Monday - Friday, 9.30am - 5.30pm)
Mobile: 07768 847 545
The Ileostomy Association
IA, the
Ileostomy and Internal Pouch Support Group
(formerly known as the Ileostomy Association of
Great Britain and Ireland), is a mutual support
group which has the primary aim of helping
people who have had their colon removed.
It was
started in 1956 by a group of people who had
ileostomies themselves, together with some
members of the medical profession. It was the
first ostomy association in the United Kingdom
and it is a registered national charity (no.
234472). For a full history of the association
click here.
Certain
inflammatory bowel diseases, e.g. ulcerative
colitis and Crohn's disease, sometimes cause
such considerable damage to a person's large
intestine (colon) that it becomes necessary for
a surgeon to remove it entirely.
With a
Brooke ileostomy, the lower end of the small
intestine (ileum) is brought out through the
abdominal wall, and the body's waste matter is
collected in an externally attached bag.
Alternatively, a patient who has ulcerative
colitis may be able to choose to have an
internal pouch, which involves the construction
of a reservoir from a section of the ileum,
after removal of the affected colon. Someone who
has a pouch does not need to wear an external
ileostomy appliance (bag). People who have
Crohn's disease cannot usually have an internal
pouch.
It is
estimated that there are more than 20,000 people
in Great Britain and Ireland who have had to
have their colon removed. This means that you
might well have already met someone who has an
ileostomy or internal pouch, and know that they
are able to lead perfectly normal lives.
Who for:
Anyone who has had their colon removed, their
families and friends
Referral: Self
Cost: £12-00 per annum (£8-00 aged 60+)
Contacts
Website:
http://www.the-ia.org.uk
Telephone:
0800 0184 724 (free) or
028 9334 4043
Fax:
028 9332 4606
National Association For
Colitis and Crohn’s Disease
NACC has
30,000 members across the United Kingdom
There
are 70 NACC Groups around the country, arranging
educational and support meetings, publicity and
fundraising. Each Group is supported by a
Medical Adviser
Membership is open to people who have Ulcerative
Colitis or Crohn’s Disease, their families and
friends, health professionals and anyone
interested in supporting the work of the
Association
Referral: Self
Cost: No charge
Contacts
Website:
http://www.nacc.org.uk
Administration, Membership and Press: 01727
830038
Fax: 01727 862550
Information Line: 0845 130 2233 (or 01727
844296)
NACC-in-Contact Support Line: 0845 130 3344
The Oesophageal Patients
Association
The
Oesophageal Patients Association is an
independent registered charity formed in 1985
when a few former oesophageal cancer patients
met and found tremendous reassurance in sharing
experiences. Since then, we have helped over
26,000 patients and carers. The members of the
Association are all patients who have
experienced oesophageal or gastric difficulties.
We have prepared medically approved booklets and
fact sheets on the problems, which we can talk
about at first hand, understanding the fears
that can be generated, the pains that can be
suffered and the effects on the digestive system
that can be experienced
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.opa.org.uk
Helpline: 0121 704 9860,
9 .00am - 5.00pm Monday - Friday
Tummy Trouble
TummyTrouble was formed to offer a unique
reference point on stomach and abdominal aches
and pains; the causes, symptoms and relief. At
one time or another everyone suffers from
stomach or abdominal pains. We discuss the
causes, the symptoms, treatments and pain
relief. TummyTrouble contains over 90 articles
all written by our team of experts and we add
around 10 new articles each month.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.tummytrouble.co.uk
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