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Musculoskeletal System
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(including Bones and Joints)
Arthritis Care
Arthritis Care exists to support people with
arthritis. We are the UK’s largest
organisation working with and for all people
who have arthritis. They are a user led
organisation which means people with
arthritis are at the heart of their work,
form their membership, are involved in all
of their activities and direct what they do.
They
provide clear and accurate information about
arthritis. Their helplines team offers
practical, confidential support backed up by
a wealth of useful publications, including
Arthritis News, their bi-monthly magazine.
They run a range of self-management and
personal development programmes, giving
people the confidence and skills to manage
their arthritis and dramatically improve
their quality of life.
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Who
for: People suffering from Arthritis, their
families, friends and carers
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Referral: Self
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Cost: No Charge
Contacts
Website:
http://www.arthritiscare.org.uk
Telephone: 020 7380 6500
Information Line: 0845 600 6868 (24 Hours)
Arthritis Research
Campaign
The
Arthritis Research Campaign (arc), founded
in 1936, raises funds to promote medical
research into the cause, treatment and cure
of arthritic conditions; to educate medical
students, doctors and allied healthcare
professionals about arthritis; and provide
information to the general public.
arc
is the fourth largest medical research
charity in the UK and the only charity in
the UK solely dedicated to investigating
arthritis in all its forms. Millions of
pounds are provided every year for grants
funding research, education and training.
Who
for: Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.arc.org.uk
Telephone: 0870 850 5000
Fax:
01246 558007
BackCare
BackCare
is an independent national charity that helps
people manage and prevent back pain by:-
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providing evidence-based information via
their website, facts sheets, publications
and Talkback magazine.
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promoting best practice in the prevention
and management of back pain
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funding research into the causes, treatments
and management of back pain
BackCare
represents people with back pain, a broad range
of health professionals treating back pain,
researchers and employers and is uniquely placed
to act as a conduit for information exchange and
debate.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.backpain.org
Telephone: 020 8977 5474
Fax: 020
8943 5318
Helpline: 0845 130 2704 (local rate)
Brittle Bone Society
Founded
in Dundee in 1968 the Brittle Bone Society is
the only UK wide organisation providing support
to people affected by the rare bone condition
Osteogenesis Imperfecta (OI). Still based in
Dundee the BBS now has around 1,000 members.
They offer help, support and advice to anyone
affected by OI, including family, carers, social
workers and other professionals.
Who for:
Anyone suffering from OI, their families,
friends and carers
Referral: Self
Cost: No charge
Contacts
Website:
http://www.brittlebone.org
Telephone: 01382 204446
Fax:
01382 206771
Freephone helpline: 08000 282459 (for advice
only)
Children’s Chronic
Arthritis Association
The
Children’s Chronic Arthritis Association is the
leading charity run by parents and professionals
to provide help and information for children
with arthritis, their families and professionals
involved in their care.
We offer
emotional and practical support to maximize
choices and opportunities and raise awareness of
childhood arthritis in the community.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.ccaa.org.uk
Telephone: 01905 745595
Fax:
01905 745703
National Ankylosing
Spondylitis Society
If you
are suffering from ankylosing spondylitis you
may well have various questions about the
disease. The National Ankylosing Spondylitis
Society (NASS) have produced a website to answer
the questions patients most frequently ask. It
also contains practical advice on things you can
do to make the condition more bearable. Your
family, friends, work colleagues, and even your
GP, may also be interested to read it.
Who for:
Anyone suffering from Ankylosing Spondylitis,
their families, friends and carers
Referral: Self
Cost: No charge
Contacts
Website:
http://www.nass.co.uk
Telephone: 020 8948 9117
Fax: 020
8940 7736
National Osteoporosis
Society
The
National Osteoporosis Society is the only
national charity dedicated to improving the
prevention, diagnosis, and treatment of this
fragile bone disease. In the United Kingdom, one
in two women and one in five men will break a
bone, mainly because of osteoporosis.
The NOS has a unique role. It
draws together the many health and social care
disciplines involved in osteoporosis together
with 25,000 members, more than 1,000 volunteers
and 44 staff to provide unrivalled expertise.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.nos.org.uk
Telephone: 01761 471771 / 0845 030 0450 (Mon to
Fri 9.00am - 5.00pm)
Fax:
01761 471104
Helpline: 0845 450 0230 (Monday to Friday 9am -
5pm)
National Rheumatoid
Arthritis Society
National
Rheumatoid Arthritis Society provides support
and information for people with Rheumatoid
Arthritis and Juvenile Idiopathic Arthritis,
their families, friends and carers, and health
professionals with an interest in Rheumatoid
Arthritis. NRAS provide you with a comprehensive
information and support service which
encompasses everything you might want to know
about rheumatoid arthritis, living with the
disease and coping with the impact on your
quality of life this causes.
Who for:
Anyone suffering from Rheumatoid Arthritis,
their families, friends and carers
Referral: Self
Cost: No charge
Contacts
Website:
http://www.rheumatoid.org
Telephone: 0845 458 3969
Helpline: 0800 298 7650 (UK only)
Fax:
0845 458 3971
Scoliosis Association
The
Scoliosis Association (UK) was founded in 1981.
It is the only independent support group for
scoliosis in the UK. There is no cure for
scoliosis, only corrective treatment for the
twisting and curving spine. SAUK aims to provide
information about scoliosis, eliminate fear and
stigma, and offer contacts for shared
experiences.
Who for:
Anyone suffering from Scoliosis, their families,
friends and carers
Referral: Self
Cost: No charge
Contacts
Website:
http://www.sauk.org.uk
Helpline: 020 8964 1166
General
Enquiries: 020 8964 5343
Fax: 020
8964 5343
UK Gout Society
The UK
Gout Society is a registered charity, launched
in December 2002.
Its
mission and objectives are :-
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To
provide basic information about this
metabolic disorder for people who suffer
from gout.
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To
provide gout sufferers with further
information about the causes and treatment
of gout, and about organisations that are
committed to education, health promotion and
the prevention of gout.
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To
increase public awareness and knowledge
about this painful, potentially disabling,
but eminently treatable disorder.
Who for:
Anyone
Referral: Self
Cost: No charge
Contacts
Website:
http://www.ukgoutsociety.org
Helpline: 020 8964 1166
General
Enquiries: 020 8964 5343
Fax: 020
8964 5343
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